Friday, 7 June 2013

07-06-13

Friday, June 7, 2013

Haha, I just realized that the first two numbers in today's date equal the year. Wow, someone is a bit slow today and to be fair, that's a good way to sum up my day. I think, as a consequence of yesterday being long and physically tiring, today has felt very slow and been very lazy. Not a bad day, just a slow day. It was very unproductive and I didn't even make it to the physio gym, even though I said I would go. It's strange though because I realized once I had got up that I was not the only one feeling like this today, as there were a number of others feeling much the same as me today. There was nothing particularly wrong with me emotionally. I was not feeling down about anything, but just felt tired and didn't feel up to doing anything today, so I just sat in the sun with my iPod and put my head on the side of the tree and had a nap.

I didn't get to have a shower today because I share a bathroom with one other guy and he took forever this morning for some reason. By the time it was free, it was 11:30 and then the cleaner wanted to clean it before she went for lunch, so I just had a wash today. Seriously, my own bathroom again is one thing I will appreciate all the more when I get home. I've had a bathroom to myself since I can remember because in all houses I have lived in, we have always had two bathrooms and so it's been one for me and one for mum and my sisters.

I was so tired today that even though I did have a nap already and I'd slept in, I got back into bed around 3 and fell asleep within minutes and didn't wake until around 4:15. This evening I watched the AFL game and even though I hate both teams (Carlton v Essendon) it was something to pass the time as I really had nothing better to do. It was actually a good game to watch and ended very close. Then after that, a really old Superman movie was on and so I've just been watching that, which brings me to now.

Seriously, I'd give my right foot to have been at youth tonight. Sometimes when I've had a lame week like this week, not bad, just lame, youth is the spark that wakes me up again and reminds me that life is exciting. Well, hopefully I'm out sooner rather than later because not being at youth and no Dockers game this weekend makes Perry go something something.

Thursday, 6 June 2013

06-06-13

Thursday, June 6, 2013

If it were physically possible at all, today would go back and visit yesterday and punch it in it's ugly face. Today totally kicked it's backside! I didn't get good sleep but I wasn't expecting much sleep last night anyway because of something happening with someone near and dear to me, but she's AH-MA-ZING, so I honestly don't mind one bit. So this morning was a slow start and it didn't make it any better that at both breakfast and morning tea, they forgot my coffee. However, that would be the end of the bad news for today.

I managed to reach another personal milestone today. I don't remember if it was mentioned yesterday but I asked my doctors if I am allowed to try and get up on my shower chair to take a proper shower and obviously without assistance. To my surprise, they unanimously agreed that it would be fine and so today, I got up and had a proper hot shower! It was so good to do that properly instead of a wash in bed. Also, it makes me feel better personally to no longer have a nursing assistant have to help me with that. Seriously, I know they are all professional and just doing their job, but it doesn't make it any less disturbing, even for a guy who has had them so many times that I should be used to it. I guess you just never get used to things like that.

After that, I had to go and listen to a lecture about spinal care but the annoying thing is, I realized today that almost everyone who is a medical professional, are perfectly healthy themselves. Most of them have no idea as to what it is like to be sick, either physiologically or emotionally whatsoever. What I'm getting at here is that most of them give the classic line to say "I know how it feels and I know more about your physical issues than you because I have a medical degree." No you do not, so shut up, stop lying to me and go find a new job, you arrogant piece of work. Sorry, just had to get that out.

Lunch today was a really good "get fat diet" feed. It was what they call a mix grill, so there was a lamb chop, beef sausage, bacon rasher, hash brown and just for laughs, an orange for dessert. I guess there had to be something moderately healthy in there for good measure. I mean, this is a hospital after all.

Not long after lunch, I had to head next door to Shenton Park rehab to see Sandy, my occupational therapist. She wanted to make sure I was still physically capable of getting into and out of a car safely. Little did I know what would come next. She asked me if I had intention of obtaining my driver's license and I said yes. I moved over to get into the driver's side and then, she told me I had to put my own chair into the car all by myself. Well, I put the seat belt on so that I was stable in the seat, put my own seat back so I was almost lying down. Then I took my cushion off and put it in the back. I took the big wheels off the frame and put both of them on the front passenger floor, before attempting to lift the frame of the chair across my body and in a sitting position in the front passenger seat. It was heavy but I did manage to do it without too much of a hassle and now I must say I have the utmost respect and gratitude to anyone who has ever loaded and unloaded my chair into a car.

As if I wasn't already tired from O.T., there was still an hour before I needed to go back into bed and so I kept my word that I would attend the gym today and got straight into it. Peter, my physio, was a lot nicer than he was yesterday when he made me feel as though my effort wasn't up to scratch. He even said to me about ten minutes before I was meant to go that I should probably head off to make sure I was back on time. I told him I was not going to leave until I was finished and I didn't. For the record, I was in bed right on time anyway.

Being in bed came at a good time because I was physically spent, so wasn't happy when the one hour I was in bed seemed to fly by really fast and before I knew it, it would be time to get back up again. I went outside to feel the last bit of sun but was a bit disappointed as only a few minutes later, it was getting cold already. Dinner was a bit disappointing tonight but that's okay because I wasn't that hungry anyway and not many others liked it either tonight. One of the other patients here started talking to me after dinner and she's got a son a little older than me. I'm not quite sure how old she is, but from talking to her tonight, we have had some very similar experiences and battles in life. It was cool to share some war stories over a coffee with someone who really could relate and understand what I was talking about.

My evening has been pretty lame because as I have previously mentioned, I have had a tiring day and so haven't done much at all. I've just been lying here trying to rest a bit as I am a bit sore already and Peter, my physio, wants me again tomorrow. God, help me! Well, that's enough for me today so I'm out of here.

 

Wednesday, 5 June 2013

05-06-13

Wednesday, June 5, 2013

For the most part, I am going to forget today ever happened. Sure, there was decent sleep because as I mentioned yesterday, I didn't need two hourly turns at night for the first time, which meant a peaceful rest and I also had the heater on so I wasn't cold either. I woke up feeling pretty good to the sound of my phone message tone and was pleasantly surprised to see it was Kathy. It was cool because even though it was just text messages, we talked a bit and I even got given a monkey! Take that, Justin Bieber! (Disclaimer: That will be the last time I ever mention that name on this blog).

The only negative about hearing from your best friend early is that was the high point of my day. It was terrible from then onwards. Not long after, I got out of bed and the nurse that was helping me get ready was one of those people who I would question whether they actually have their degree or not. He didn't even know the most simple of things that even the student knew. I knew I was going to be in for a long day! I managed to get outside and forget the world for a few minutes in the sun, so I felt a bit better, only for my mood to come crashing a few minutes later. It was time to see the doctors and they have this stupid habit of giving a positive comment, followed by a very negative one. Today they said I'm going really well and they are happy with things, but I am not quite ready and won't be going home next week, which was originally expected. Now I have no idea as to when I am going home and I don't even know exactly what it is that is stopping me because I feel pretty healthy and am doing everything for myself again. It's really frustrating but I guess it is good to have doctors that are thorough and don't let me go until they are certain I am going to be fine when I do go home.

I wasn't too hungry and so didn't eat much lunch, even though it was roast chicken which is usually one of my favourites. I went up to the physio gym, only to notice nobody was there at the time and so I just went back to bed because the weather was starting to look crappy, so being outside wasn't going to be fun for much longer. At around half two I got up again and headed straight for the physio gym. I put in a good effort and did everything that was asked of me, but apparently it wasn't good enough and so I need to go everyday now instead of every second day. Way to make a guy feel better about himself! I had dinner and it seemed again I had a sign on my head asking everyone to whine to me, so I retreated to my room early, even though I was allowed up for another half hour.

Now of course tonight I watched the rugby state of origin game, but because I promised a couple of people, I won't be giving much away here about the game. I'm just going to say it was a good way to forget about my day and my issues for a couple of hours. Hopefully I'm out for game two and so I can watch it with some Queensland-supporting friends instead of all by myself.

The last strange thing to happen today happened around an hour ago. I got a random text from mum basically saying, "You 27, why you no have kids yet?" My honest reply: "Aside from only a few women, whom I can count on one hand, women have cooties." So, ladies and gentlemen, that is why I am single and not making babies anytime soon. Cooties. That is all.


Tuesday, 4 June 2013

04-06-13

Tuesday, June 4, 2013

Today I must admit has been very draining on me, both physically and emotionally. As I write this, all I want to do is lie down and put today behind me. I wasn't even going to write a blog tonight, but I remembered I am trying to be more consistent and disciplined and doing things like this, even when I don't feel like it, is just one of those things. So, I press on and am doing it.

My day was draining because I didn't get a good sleep for a start and then I had an appointment this morning at occupational therapy. It was just at really bad timing because I had to leave right on morning tea time, so I was just about to get my coffee but couldn't because I had to go. However, the lining was definitely silver in this situation because after I went to O.T. so that Sandy, my O.T. could assess how well I am doing with my chair-to-chair and chair-to-bed transfers, she made me a coffee and she made it nice and strong too, so that made up for it. Oh, she passed me on my transfers, by the way. This means I can officially get out of bed and into my chair for myself and don't need a nurse to assist me. For the last few weeks that I've been getting out of bed, they have been using a hoist because apparently it's policy to hoist patients until they are medically cleared to transfer, even if they have been doing it for their entire lives. It's frustrating when you are told you are not allowed to do something when you know you definitely have the capabilities to do it, but it's relieving when you're told you can do it again.

I've also been passed on moving around in bed. You see, for the past five months that I have been in hospital, I have had people come in every two hours to help me turn over. Again, it's one of those things I know I am capable of doing when I am healthy, but because of the nature of the bone infection, it's best to get assistance until I am getting better and I guess this means I'm well on the way. Hopefully this means tonight I will sleep better as I shouldn't have anyone coming in at all tonight.

On Thursday I will be practicing car transfers and that will also help decide on exactly what type of new wheelchair I need to get. It's hard to explain but there are heaps of different chairs out there now that fold in all sorts of different ways and come with different aids to help you get them into your car. Seeing as I am looking at getting my license and a car, it is something I now need to think about when designing my chair.

After lunch, I was chilling out in my spot near the gum tree I like and I just happened to make eye contact with my physio and he told me he expects me in tomorrow. He was disappointed I didn't go in today, but once I told him I had to go to OT, it was all fine.

I got up for dinner the second time I was up today and it felt like at that time someone must have put a secret tattoo on my forehead saying, "Complain to this man about your issues." Seriously, for the next hour, I swear everyone who I saw was complaining to me about one thing or another. Even though it was getting dark, I went outside just because I was getting annoyed hearing all the negative drama. It's true that other people's attitudes do become contagious and they have the power to drain you or energize you. Don't be a drain!

This evening I was rather impressed with another staff member. As I was last night with Zoe, tonight it was Michelle. She, like Zoe, unexpectedly went above and beyond the job description and did it with a smile and not a single word of complaint. I didn't even need anything at all from her at the time, but she was due to leave at around 8:00 as that was when her shift ended. I hear a knock on my door and said to come in, having no idea who it was. It was Michelle and she had a sandwich, some biscuits and a coffee and said she just had to make me something herself before she left for the night. If there wasn't a stupid rule about it being unprofessional to hug staff, I would have given her a decent hug for that. I didn't even ask for it but she did it just because she is a really decent person.

I must admit that, as I said at the top about how I actually don't feel like doing this right now, my mood has dipped a bit the past couple of hours. I don't know exactly what triggered it, but when I'm tired it doesn't take much, but I am really missing being home right now. I miss my mum, sisters, closest friends and just the familiarity that normal life has to offer. It's tough because I haven't seen many of those people I love most for a while, but knowing I don't have too long left is good. Well I'm off to get some decent sleep because I'm sure to be smashed around in physio tomorrow.




Monday, 3 June 2013

03-06-13

Monday, June 3, 2013

Today I must acknowledge that it is WA day and that I am definitely a proud West Australian. Sure, while Mum was pregnant with me, she trekked it to Melbourne but fortunately for me I was born over here in Western Australia. I was born in King Edward Memorial Hospital, to be precise. Anyway, I'm not going into detail about the time I was born because, to quote a common meme: Ain't nobody got time for that. Being West Australian means I was born and raised to hate Essendon, Carlton and Collingwood and I can honestly say I still do hate them with a passion. I was also taught that just because we come from a relatively small city to not let the arrogant snobs from the east pick on us, just because they think they have things bigger and better than we do in Perth. I'm not saying all of you in the east are arrogant snobs, but some definitely can be.

Anywho, onto my day. It's been much better than yesterday simply because I was actually left alone last night and managed to get some sleep. I got about twelve hours rest and so I woke up feeling nowhere near as sick as I have been over the weekend. I've kept all my food down and I did get up twice, for two and three quarter hours each time. Tomorrow I get up twice for three hours each, totalling six hours. I must admit I'm grateful it was a public holiday here today because even though I am feeling better, I'm still feeling a bit flat after being a bit sick. It was nice to have one more day to make sure I'm good before tomorrow having to attend OT and physio. First time getting up this morning I managed to get outside to find it a really nice day but unfortunately there were some people smoking near where I usually like to go and so I had to go somewhere else. The second choice had bees all around it and I am allergic, so I had to find another spot. I found another spot and it was fine, although not as nice, but still good. There was a funny moment when a couple of guys asked me if I'd like to join them while they go into the bush to get high and forget their pain for a while. I told them I'm already high on the most high and I've got a better pain solution and his name is Jesus. They then really did look at me as though I was high on something.

The second time I got up, I watched the Eagles game and did not enjoy it at all. I thought, especially over here and on WA day that they would put in a good performance, but their effort was absolutely terrible and consequently, they lost and rather badly too. Although, I recently saw the score in the NRL and I should not be laughing too hard because the Broncos got smacked by the Warriors tonight. Well, Nathan has told me that they are traditionally poor around origin time and I guess if I had to take one, I'd rather Queensland win origin and Brisbane lose a couple of games. Although it should not be an excuse, it has proven to be true over the last few years.

Before I finish for today, I'd like to publicly honour one of the staff members here, Zoe. Not only does she have an amazing name, but tonight she was looking after me and at 6:30, I needed her help with something. She was on her dinner break and meant to be until 7:00. She got up without a fuss, attended to me and made sure I had everything I needed. She even went the extra mile and because I missed supper as I was busy at the time, she went and made me a fresh coffee. She sacrificed her dinner for me and did it all with a smile and no complaining whatsoever. Now that is nothing short of fantastic!

Sunday, 2 June 2013

02-06-13

Sunday, June 2, 2013

Today will be a quick one because to be honest, I don't feel like doing this. I just want to go to sleep, or at least try it for a while before I get harrassed a million times tonight.

It has not been a good day for me today because as I said yesterday, I was not feeling well and today I seem to have become worse. My headache hasn't been as bad, but I am rather lethargic, nautious and just generally feeling like crap.

Just before lunch, Aunty Coral came in with a decent coffee and some of her own baking (which was good, by the way) and I managed to drink that okay. Lunch came and even though it was a nice roast, I only ate about half of it before I felt sick again and then went back to sleep until about 1:30.


It hasn't been all bad today though because I still managed to get up out of bed (though it was only once for two hours and forty five minutes, instead of twice for that amount of time) and I spent some time outside to get some fresh air and that did help me a bit, or so at least I thought. I then went back inside to grab a jumper because the air was a bit cold and when I went back outside, I felt sick again and couldn't stop myself vomiting the little amount of lunch I'd tried. I didn't even bother with dinner tonight because it didn't even look good and I didn't feel like risking it. 

Also today I did hear from Kathy, which made me smile, even though it was only a few brief messages. Just knowing that someone genuinely cares when you're not well is a great thing, especially when it's unexpected. Today I realized something about myself: no matter how I am feeling physically, hearing from my best friend and watching an Adam Sandler movie (Anger Management) will always make me smile and feel better, at least emotionally. 

Well that is enough for today because as I said at the top, I am tired and not feeling the best. 

Saturday, 1 June 2013

01-06-13

Saturday, June 1, 2013

I think it's appropriate, responsible and mature if I start this blog the right way: A pinch and a punch to all of you for the first of the month and no returns! Right, now that is out of the way, let me tell you about my day today. As I mentioned last night, I discovered that I have heating in my room and I must admit that having the heater on last night has definitely helped with the joint pain. Today they felt totally fine and pain-free. However, aside from this, it was not a great day from a physical point of view. I woke up with a cranking headache and nothing seemed to work today to fix it. I tried sleeping it off, drinking more water, getting some fresh air, drinking strong coffee and nothing has helped. I really don't want to resort to pain-killers because the only painkillers that work on me are the likes of oxycontin which knock me right out and leave me feeling sick. Because of everything I've been through medically over the years, nothing else touches me anymore because my body has built an immunity to most of it. That's not as good as it may seem because it's at the stage now when I am home, I can't do much if I get a migraine other than just wait for it to go because without a doctor's script, nothing over the counter works for me.

Aside from the headache and feeling generally unwell, it hasn't been a terrible day all-round. I did manage to still get out of bed for five hours in total (2x 2.5 hours each) and watch the Dockers go six weeks now without a loss. I must admit going into the bye, I'm getting a bit excited for the second-half of their season because some of the best players will be back and they are very well placed already. However, I've been following them since their inception in 1995 and so I know not to get too carried away because anything could happen. Still on the AFL, I watched Geelong v Gold Coast this evening and thought it would be a very boring, one-sided game of footy and I was only watching it to pass the time really. Therefore I was pleasantly surprised to see that for three quarters, the Suns took it right up to Geelong with their intensity at the contest, their skills and their only downfall was that they didn't put more reward for their effort onto the scoreboard. Unfortunately for them, they grew tired as they are a very young team and Geelong managed to run over the top in the last quarter and secured what looked like a reasonably comfortable win in the end.

After the footy, I found Die Hard on ten and so I've been (and still am) watching that. However, I've still got that wretched headache and am feeling unwell so I'm going to try get some sleep.